I know a good bit about this condition as it is in my area of the big mechanics shop of healthcare. I have treated only two patients with the condition as it is pretty rare.
What are your
specific signs and symptoms? HOw long have you been experiencing this problem? Is it constant or periodic? Have you identified a particular trigger point or area that causes the pain to begin when stimulated? Where is the trigger zone, if identified? What treatment regimens have you tried other than using narcotics to dull the pain? Do you have any loss of motor or loss of sensory perception in the area? Does it affect you on both sides(bilateral) or only on one side of your face? Has anyone ever given you a local anesthetic injection in the trigger zone? Specifically, how long does the pain last in general if you have an episode?
Oh yeah, and what specifically did the docs that disagree with the Dx cite as their reasons to believe its something else.
I know..lots of questions. You want help though right?
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Originally Posted by you
I used to pass out
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Hmmm..any other cosymptoms like low BP or slow HR when this happened? Can swallowing set off your symptoms and cause the episodes?
